The data will be used by UK researchers to answer important questions about ASD. Researchers will apply to the ASD-UK steering committee that includes parent members who will make a decision about which studies to support. The steering committee will contact families about research studies to see if they are interested in taking part. Your details will not be given to the researchers. If you choose to take part in a study you will be given the contact details of the researchers to contact them yourself. You are under no obligation to take part in any studies – the services you and your child receive will not be affected in any way by not taking part.
You will be kept informed about the progress of ASD-UK through this website and through an annual newsletter. You will also be contacted from time to time to ask you to provide updates about your child’s development and any further assessments or tests your child may have had.