Information for parents

This Information page can also be downloaded here

You are being invited to take part in a project to set up a UK research family database of children recently diagnosed with an autism spectrum disorder (ASD).

We are including children with a diagnosis of autism, atypical autism, autism spectrum disorder, pervasive developmental disorder, or Asperger syndrome . The project is called Autism Spectrum Database-UK (ASD-UK). Research about ASD often requires large numbers of participants. ASD-UK will enable large studies to be undertaken to address important research questions about ASD. At present, the majority of families of children with ASD do not have the opportunity to take part in research studies. A national research database will mean that children and families are more able to participate in research, and have access to research findings.

We would like you to help by agreeing to participate in the ASD-UK project. We are inviting you to give details about your child’s diagnosis, and about your family; this will give you the opportunity to take part in ASD research studies. Here is information to help you decide whether or not you wish to take part. Please contact us if there is anything you do not understand or if you would like more information.

Thank you for taking the time to read this information. If you would like to participate in the ASD-UK project please fill in the Contact form attached to this information sheet and return it to us in the stamped addressed envelope. Once we receive the form a member of research team will phone you in the next 2-4 weeks.

We can only contact you if you send us the contact form. If you have any questions, please speak to the member of the child health team who discussed the project with you, or

 contact the research team.